Patients & Public
Patient and public representatives were involved throughout the development of CYNAPSE. Our engagement activities have demonstrated that patients and the public want to see fair, safe and transparent use of their data so the CYNAPSE platform focusses on these priorities. Our patient and public partners, the CYNAPSE Co-creation Group, were closely involved in shaping future platform developments to ensure that opportunities for new collaborations and discoveries are maximised while ensuring that original data remains as secure as possible.
Researchers accessing CYNAPSE data are strongly encouraged to involve patients and the public in their research projects.
"I have been delighted to be involved with CYNAPSE since the beginning, and to work in collaboration with the team to shape this project, both to the stage it is at now and with how it plans to move forward in the future"
"The CYNAPSE platform will allow researchers to collaborate and conduct research in a secure and governed research environment. This gives patients and the public greater confidence in sharing their health data, so that we can accelerate and maximise the opportunities for translational research, and future patient benefit."
Rosanna Fennessy, CYNAPSE Co-creation Group member